Today marks the end of the alphabet as we have reached Z, I already know wonder what I will about next week but I am sure something will come up. So back the the letter Z and this weeks word Zone. For those people who does not know zone, it is when you are interested very much into a subject that you forgets thing around you. Yes that sounds very normal I would say but the thing for Asperger’s is that we get so much in the zone that we forget everything else and I mean literally everything else and it can be so, lack of better word, bad for us that we forget to eat or drink and if you try talk to us we might even ignore you. I guess it is good to be in the zone since you get things done whatever it is legos, your job or what else just sometimes we need a timer so we know it is time for other things and I guess a heads up about the time is about to run out is good. These days I feel the introduction of all the notifications from phones and what else makes it a bit harder to get into the zone but it is still there. So sorry in advance if I am ignoring you.
Tag: Alphabet
Y = ‘YOLO’ or You only live once
Today letter is Y which I have decide means ‘YOLO’ which means You only live once and I think I will start living a bit after that since a friend from Slowly (Great and stress less pen-pal / friend finding app & website) said I was too much in the past feeling sadness and rage about the things which has happen to me. I am not 100% sure I agree with my friend that I am stuck in the past (maybe this post show I am) more than I feel hurt that people like are still treating people with diagnoses bad just because they are different that most other people. I am not sure what my first steps of YOLO but I want to focus more on the present and the future than the past now. If you read this before we reach each other friend then thanks a lot.
X = X-ray
Today letter is X and I have picked x-ray since it is one of the ways you can see the difference between me with Asperger’s and you with a normal brain. I have no experience with it other than MRI scanning which was part of my finding out.
W = Wild
This week I have arrived at the letter W which I have decided stands wild since I some people watch people with Asperger’s and other diagnoses as wild people just because they are acting different that normal people. I know some of us have a hard time eating still in class and such but that does not mean we are wild animals it just means we need help and not people trying to make us less part of the school or whatever. I know it might be annoying for normal people but I am sure you also do something which might not be good for us as well and a good example is that your bully us for being different.I keep hearing people complain that we are wild and ruining class and yes maybe we are but have you thought of maybe try fixing the problem, I mean these days people rather want a tax relief than send more money to the school world and what else taxes is being used on. We all need a good child hood to get good jobs and good family in the end while if we keep blocking the ‘wild’ kids from being part of it then things ends up bad in the end for everyone. Sorry if my personal feeling comes out too much today.
V = Voice
I have decided that todays letter V stands for voice as it has two important meanings in my opinion so let gets to it.
The first voice is the way we speak and talk to each other which might not seem like a big deal to you, but you are using your voice to show how you feel and such since if you with smiling you will sound joyful and such but people with Asperger’s sometimes have voices that don’t go with the conversation they are having with you, meaning you might find them rude even they are not trying to be. Another thing I know from myself is that I can become very loud if I am very interested in the subject which might be bad if people needs me to be quiet.
The second voice is that I feel that people forget that people with Asperger’s and other diagnoses is people too so sometimes you take our voice and throw it away since you don’t feel our voice is valid in the context but every opinion and voice should be respected and at least heard.
U = Understanding
Well, I have already been covering this a bit doing under letters but U = Understanding as I feel it is the most important thing you can do for and with a person with Asperger’s. I know that things might be easy for you or other people but sometimes I need to hear things a few times before I understand what I need to do and I am glad to learn it but if you just tell me to do things then sometimes I feel like I being force to do things. Fx I hate phone calls, I always had, always will no matter what you want me to. I can learn to feel better about phone calls of course but still no matter what you say or feel about it I will still hate them since I do not like them at all. Because of this ‘hate’ or fear of phone calls then I can have a million ‘good’ phone calls and still feel bad. I guess the reasons I hate them is because they are loud, unexpected and I feel like I share my world with the entire world and I do not like that unless it is happening in quietly like this text fore sample. I do not mind to share my thought, feelings and so on here since it is happening at the speed I want. I found them loud because of all the speaking and the phone ring itself. The unexpected comes that you never know when it happens, the phone call I mean and you do not know what will be spoken about while if you are texting, I only have to focus on the text, I do not need to focus on your voice, what people around me are saying as well and I can take things one at a time plus I have time to think. Guess this is a good example of how to understand me. I am not saying that NT are perfect but sometimes you act like if we do not do things exactly the same way as you then it is just bad. As for understanding me better you can always ask me questions as I love answering them plus I highly recommend the movie Adam as a movie to watch where you can see how Hollywood see us while Rain Man is an older but great movie too.
T = Tests
I have decided that T stands for test since I have personally experienced being tested a lot of times before the doctors found out that I have Asperger’s at around 18 years old where I was at a psychiatrist since my head was the last place to look. Before that I went for MRI scanning, children doctor, almost allergic test, normal doctor and everything else which could maybe give an answer why I was sick so often as a child. I am glad that they finally found out why I was different and would not even wish for my enemies to not know who and why they are like that. These days things have gotten more easier to test since we have learned a lot about what to look for and how to do things better for Asperger’s. I guess now we just need to be better at knowing what to look for when looking at females since not many girls have it and it is very different that for males. Except for the bullies, then I think I had a fine childhood even that my parents had no clue what was going on with me so I would not trade it away even if a test who have helped me more since I am sure that it would have given me some side effects as well but I do hope that someone all get diagnose and people learn to understand and respect us.
S = Syndrome
Today I have reached S which to me covers syndrome as I feel many people forgets that it is a syndrome and not a sickness. I had a teacher in second class of high school who didn’t respect / understand that my Asperger’s was the thing that made me stressed and sick so he didn’t want me to go to school at all when I puked even it was only my Asperger’s which made it happen and not anything else. I wanted to go to school and I wanted to be part of the world but he didn’t see the point since according to his one words then ‘you are sick, don’t make your class mates sick as well’ so I lost mood to go to school some days because of him. Other times then people complain that people with Asperger’s is acting differently than me but just like people can be sick differently then Asperger’s can be different for people as well so don’t put us into one box. I understand it can be scary and maybe even frustrating to be a sibling of a person who needs very much help but we don’t all need as much help as in Rain man. I don’t know how to count cards either hahahaha. But seriously treat us like yourself and stop putting us in a box.
R = Routine
Today I have decide to continue with the letter R and I have picked routine. Personally I am fine being spontaneous sometimes so I do not need everything to be routines but I like that there is order and system in my things like I have a routine I do when I wake up, go to bed and such. I guess we like routines because we are not always the best at knowing what happens or what to do in new events and such. Other people with Asperger’s can have a serious meltdown if their routines are broken while my breakdowns more happen if too much is required of me. So if you really wanna make a person with Asperger’s feel good allow him to follow his routine and let him do it without telling about new things happening in 10mins but rather give him as early heads up as possible.
Q = Questions
After the long post last time with p for patient I have decided to pick questions since it is a short and simple. I love asking questions about things because I want to know the answer and it is not always it fits the context. Like I remember back in primary school we were learning about Greenland and I suddenly wanted to know everything about the narwhal and how many q’s inside the Greenlandic words. I had a good teacher back then so I got allowed but sometimes my questions can be rude without I think about it so don’t blame people with Asperger’s for asking rude questions but help them know that it is not the right question for the time being.
Btw this reminds me, feel free to ask anything you like about Asperger’s and I will do my best to answer them.
You but different 